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The Final Video

on March 30, 2012

Video from a Year ago today.  At one point in the day, I was holding Alexander and said “I should put him down for a nap” then I thought “well, why? he has his surgery tomorrow, and I might not be able to hold him for a long time after that”  But, he was eventually getting tired so I did put him down.  As you can see in the video, he was clearly not going to Nap!  My mom kept taking short videos of him.  I was upset at first (because she wasn’t letting him nap!) but now I am so grateful that she did!  Maybe he knew something we did not know, and he gave us a beautiful joy filled day!   As we were reading to him later that night, he was fighting to keep his eyes open!  He finally went to sleep some time after 7:30pm which was past his normal bedtime.


4 responses to “The Final Video

  1. Mary DeWinkeleer says:

    This video makes me laugh and cry at the same time. What a treasure it is!

  2. Jackie says:

    He is so beautiful… I could only watch a few minutes b/c I couldn’t see through my tears. I don’t get any of this… I never, ever will…. I think of your family all of the time. I already try to death of Andrew even though he is ok right now, b/c I feel like the pain would be less if it happens if I get it out now… I think I am probably wrong…. Jackie Goodell

    • thecookiegal says:

      now that I am on “this side” of the cancer world, I pray for those that are on the other side. The ones that will live in constant fear that the cancer will return and eventually take their precious children’s lives! Try to live in the moment and not worry about that day, which I pray will never come for you! As another boy that just lost his life to neuroblastoma said as he was dying “SMILE, BE HAPPY!”

  3. Kathy Moynihan says:

    He was always so happy and adorable1 A beautiful child, and a perfect angel in heaven now. A smile tht for ever warms your hears and brings tears to your eyes. Will be thinking and praying for you and your fmaily this weekend. Thanks for sharing this special gift.

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