thecookiegal

Welcome to the CookieGal's world!

Please Vote!

I am in a contest for the top 25 Mom Bloggers!   You can vote every day, and you can vote for more than one blog.  I have to say, that while our journey has been hard, some of these other mom’s have had a very tough time as well!   Certainly nothing I would want to go through!

I ask that you also consider voting for “New Mom, New Cancer”.  She lost her daughter in December to neruoblastoma.  Her daughter was sick for less that a year before she died, and the mom was fighting cancer on her own!

 

http://www.circleofmoms.com/top25/Top-25-Moms-with-Inspiring-Families-2012#_

2 Comments »

Silence and Sleep

I have not slept very well since I was pregnant with Alexander!  As most pregnant ladies will tell you, sleeping when pregnant gets harder as the months go on!   Once the baby arrives, it is calling out to be fed every few hours, intrupting sleep.  For us, we had the added months of Alexander being sick.  Medications, hospital visits, medications, diaper changes.  All made for very difficult sleep.

When we were in the hospital, on the BMT unit, I would usually sleep in a separate parent room.  While very dark and quiet, I didn’t usually sleep well because I was of course worried about Alexander.  In the ICU, I was also able to sleep in a parent room, but again, the worry kept me from good sleep.  If we were on the 7th floor, I always stayed in his room.  Even with the earplugs I would often wear, you could still hear the beeps and buzzes of a hospital room.

When we were home, I always had music playing for him, which I could hear through the baby monitor.  I was very in tune to his sounds, because I would wake to even a small peep.  We could also hear the hum of his TPN machine going.   On the nights I was home, and he was still in the hospital with daddy staying there, I did sleep okay then, but always worried that the phone might ring late at night to tell me something was wrong.

After he died, the house was so quiet.   No more peeps.  No more medications, no more hum of the TPN machine.  Someone suggested that I put the music back on, which I did.  That seemed to help a little.

Now – even as it is 10 months since he has been gone, I still do not sleep well.  Being pregnant I am sure has something to do with it, although I am not at the point where I am completely uncomfortable in the bed.  It is the silence still that makes it hard for me to sleep.  I do use the music at times, which helps.

By nature, my mind has a very hard time slowing down – maybe it is the ADHD.  So rather than just being, just relaxing, I THINK. If only I could DO – then I would have a very clean and organized house!  I do often crochet, but even that I have to be busy with – having the TV or radio in the background to distract me.

So often in the busyness of a work day, or being in a house filled with children, you just want SILENCE.  Some people need the silence just to THINK.  But, for me that is the problem.   In the silence, I THINK!  I think about what we have lost with Alexander – what we will never have – how much I miss his laugh and his smiles.   I worry about the new baby.  I worry about life in general.  For me, the silence is NOT golden – it is a very sad and difficult time.

2 Comments »

Dollhouse Homestead

Seven Acres in Suburbia

From the Heart

my journey through love, life and loss

CorFitness

Strong Mind. Strong Body.

My Thoughts Now.....Life After The Accident

How I am coping with life after the accident that took my Zachary and my independence away.

New John for a New Year

Life is different now

Scribbles & Crumbs

Hope. Kindness. Faith. Love

A Generous Helping

Of Laughter & Tears

blessedstray

Sometimes I'm St. Ray; sometimes I'm a stray. I am always blessed.

God Wins...but can I ?

A Mother's Journey

Sharon Randall

This is my journey -- what's yours?

Forever 21

A broken heart is open to receive...

Speaking Up for Childhood Cancer

Increasing awareness to fight the number one disease killers of children worldwide

Thanks to my Lucky Star

a story about being guided by the brightest star

de Niall Heaven Bound

Welcome to the CookieGal's world!

Penny writes... Penny remembers

Life changes, usually when you're not ready

Grieving Dads: To the Brink and Back

A book designed to help men grieve.

Life of Kai

Pure Love + Loss = PURPOSE

Sweet Tooth Tootsie

Embrace your inner Sweet Tooth